As global medical research advances, so too does our knowledge and understanding of FSHD. While this Portal helps to educate and share resources with our community, it also encourages people living with FSHD to join of the FSHD Medical Research & Clinical Trial Readiness Program.
The availability of a large, well-defined FSHD population clinically, genetically and epigenetically, is paramount to facilitate the timely and efficient running of world standard clinical trials in Australia. We invite you to be part of this critical program to ensure that clinical trials and future treatments that may become available are accessible to those living with FSHD in Australia.
Join the FSHD Global Registry
Order a FSHD Saliva Research Test to your home
Donate your Saliva Research Test results to join the FSHD Medical Research & Clinical Trial Readiness Program